Thursday, May 28, 2009

NEWS: Connecticut passes autism insurance reform Substitute Bill 301

CT Substitute Bill No. 301 passed in the House by roll call vote, has been approved by both legislative houses and now goes to enrollment and the CT governor for signature.

Vote for SB-301 Roll Call Number 307
Taken on 05/27/09 AS AMENDED
The Speaker ordered the vote be taken by roll call at 10:12 p.m.
Yes 140, Nay 2. Number required for passage: 72

Substitute Bill No. 301
January Session, 2009 *_____SB00301APP___041609____*

AN ACT CONCERNING HEALTH INSURANCE COVERAGE FOR
AUTISM SPECTRUM DISORDERS.

12 (3) "Behavioral therapy" means interactive therapies derived from
13 evidence-based research that are provided to children less than
14 thirteen years of age, including, but not limited to, applied behavior
15 analysis that is provided or supervised by a behavior analyst who is
16 certified by the Behavior Analyst Certification Board.

FULL TEXT OF THE SUBSTITUTE BILL
http://www.cga.ct.gov/2009/TOB/s/pdf/2009SB-00301-R03-SB.pdf

Status and all info,
http://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=301&which_year=2009&SUBMIT1.x=0&SUBMIT1.y=0&SUBMIT1=Normal

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Website: Practitioner Issues in Behavior Analysis SIG
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Views and news expressed in this blog or by the PIBA SIG are those of the SIG and SIG members and do not represent official policy of ABA International or other official body. For official policy of the Association of Behavior Analysis International, the reader is directed to their website,

States with passed autism insurance reform laws and bills in progress

States with insurance coverage for autism treatment, including ABA

2001: Indiana, Minnesota
2007: South Carolina
2008: Texas, Florida, Louisiana, Pennsylvania, Arizona
2009: New Mexico, Colorado, Nevada, Connecticut.


View States with insurance coverage of ABA in a larger map


Key:
Status of insurance coverage of behavior analysis for children with autism.
Green = passed bill/law
Red = bill in progress or previously introduced
Purple = bill waiting for endorsement by autism votes or introduction
Yellow = bill in progress
Blue = little activity at this time.

For more information, see Autismvotes

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Website: Practitioner Issues in Behavior Analysis SIG
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Views and news expressed in this blog or by the PIBA SIG are those of the SIG and SIG members and do not represent official policy of ABA International or other official body. For official policy of the Association of Behavior Analysis International, the reader is directed to their website,

Wednesday, May 27, 2009

NEWS: Nevada passes autism bill May 23, 2009

Nevada just passed an autism insurance reform bill, AB 162. Besides allowing families to access reimbursible treatment of autism, the amended bill (amendment 699) also specified competencies and licensing of those providing behavioral treatment. The bill has been sent to the Nevada Governor to await his signature.

Bill text and status is accessible after the newsblurb.

"Nevada passes autism bill
By CATHY BUSSEWITZ Associated Press Writer
Posted: 05/23/2009 03:13:14 PM PDT
Updated: 05/23/2009 04:38:11 PM PDT

CARSON CITY, Nev.—Nevada lawmakers gave final approval Saturday to help children with autism by requiring health insurers to cover screening and treatment of the disorder..."

FULL POST San Jose [CA] Mercury News
http://www.mercurynews.com/breakingnews/ci_12437455

The text of the bill passed,
AB162 Requires certain policies of health insurance and health care plans to provide coverage for screening for and treatment of autism. (BDR 57-44)

Introduced On: Feb 12, 2009

By: Ohrenschall Buckley Leslie Woodbury Conklin Aizley Anderson Arberry Atkinson Bobzien Carpenter Christensen Claborn Denis Dondero Loop Goicoechea Grady Hambrick Hardy Hogan Horne Kihuen Kirkpatrick Koivisto Manendo Mastroluca McClain Mortenson Munford Oceguera Parnell Pierce Segerblom Smith Stewart Horsford Schneider Lee Wiener Townsend Amodei Breeden Care Carlton Coffin Copening Nolan Parks Rhoads Woodhouse

Most Recent History Action: May 23, 2009 - Enrolled and delivered to Governor.

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Website:
Practitioner Issues in Behavior Analysis SIG
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Views and news expressed in this blog or by the PIBA SIG are those of the SIG and SIG members and do not represent official policy of ABA International or other official body. For official policy of the Association of Behavior Analysis International, the reader is directed to their website, http://www.abainternational.org


ABAI NEWSFLASH: New Practice Resources at ABA International!

During the Annual Convention in Phoenix, there were many meetings on the question of practice, and related issues of advocacy, potential licensure, as well as presentations on the state of practice and relevant developments, such as the current spate of autism insurance reform bills.

One of the new developments is a slew of resources for practitioners, listed on the Practice Resources page at the ABA International website,
http://www.abainternational.org/BA/practice.asp

Although members are urged to review as much of the page as is possible, I want to highlight a few items of note,
"New Services for ABAI affiliated chapters and organizational members",
http://www.abainternational.org/BA/practice/Malott-Services.pdf

To clarify informally--formal questions should go to ABAI, the reference on page 3, "Training is complimentary", refers to the One Day Training for Chapters, with reduced fees for those Chapter reps who choose to stay over in Chicago for the Autism Conference itself.
Under the Licensing category, see
Raymond Fowler's Discussion on Licensure to ABAI Affiliated Chapter and SIG Leaders
http://www.abainternational.org/BA/practice/Fowler-Licensure.pdf
and some resources for advocacy,

Legistlative Advocacy Handbook

Legistlative Advocacy PowerPoint

As previously stated, take the time to get acquainted with the new resources and opportunities developed during the previous year and shared at the Convention!

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Website:
Practitioner Issues in Behavior Analysis SIG
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Views and news expressed in this blog or by the PIBA SIG are those of the SIG and SIG members and do not represent official policy of ABA International or other official body. For official policy of the Association of Behavior Analysis International, the reader is directed to their website, http://www.abainternational.org

Tuesday, May 19, 2009

NEWSFLASH: GAO Report and House Committee hearing on Seclusion and Restraint in Public and Private Schools

On Tuesday May 19, 2009, the U.S. House Committee on Education and Labor held a hearing of the full Committee on,

Examining the Abusive and Deadly Use of Seclusion and Restraint in Schools
Full Committee Hearing 10:00 AM, May 19, 2009
2175 Rayburn H.O.B., Washington, DC
"On Tuesday, May 19, the House Committee on Education and Labor will hold a hearing to examine abusive and deadly uses of seclusion and restraint in U.S. schools....
Part of the testimony submitted was the investigative GAO report,
Seclusions and Restraints: Selected Cases of Death and Abuse at Public and Private Schools and Treatment Centers
GAO-09-719T, May 19, 2009
On a personal note, having listened to the testimony from Mr. Kurz of the GAO and that of parents and other experts, the situation was quite shocking--and was expressed so by the Committee members who demonstrated both anger and a sense of urgency to address the abuses to minors identified in the testimony. This included withholding of food, water and toileting due to extended seclusion instituted sometimes for trivial reasons or behaviors triggered by adult behavior, suffocation by use of prone restraint (one case given in testimony was referred to as "murder" by a Committee member), physical abuse, taping and strapping children to such as Rifton chairs . Often parents were not notified but discovered the abuse via bruises, or behavior change in their children. Many times school personnel who would have liked to either intervene or notify the parents were unable to do so because of retaliation within districts for such notification. An issue that particularly interested the Committee was that often educational personnel determined as probably culpable, in one case including the death of a student, were allowed to retain their teaching certification and would be transferred to another teaching situation or resume his/her career in another state (sometimes resuming the abuse of students as well). A Committee member referred to this treatment of children with disabilities in public schools as "like Willowbrook" (the notorious Staten Island institution that triggered the move to take children out of closed institutions).

Unlike other situations, parents were unable to enlist the assistance of such as Child Protective Services since schools are not in CPS jurisdiction, and unable to receive satisfaction or assistance through districts themselves or law enforcement were compelled to bring civil suit in order to change circumstances for their own child or for the overall good.

Some of the discussion for solutions turned on expansion of Positive Behavioral Interventions and Supports (PBIS) (which was termed by almost all in the hearing as a solution "that works") to a national level , potential of a Federal registry for those convicted of abuse or death through inappropriate application of restraint or seclusion (similar to the system used for convicted sex offenders), banning of use of prone restraint, states coordination and uniform standards of application (currently only 7 states require training in use of restraint and 19 states have no defined standards for use of restraint or seclusion).

CNN News story May 18, 2009
GAO report: Special-needs kids abused in schools
From Abbie Boudreau and Steve Turnham
CNN Special Investigations Unit
(CNN) -- Congressional auditors have uncovered widespread abuse of techniques use to restrain or discipline special-education students in U.S. schools, with some deaths linked to the practices, a top congressman says.

The findings are among those expected from a Government Accountability Office report scheduled to be released Tuesday. The report documented serious problems with the way children with disabilities are being treated in public schools, including cases of children being held face-down on the ground..."
Restraint can dispirit and hurt special-ed students
USA today
"...A new report from the Government Accountability Office, Congress' investigative arm, also out today, finds "widespread" allegations of abuse involving the practices in schools — even when students aren't physically aggressive or dangerous to themselves or others..."
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References:
Seclusions and Restraints:
Selected Cases of Death and Abuse at Public and Private Schools and Treatment Centers
GAO-09-719T, May 19, 2009

School is Not Supposed to Hurt: Investigative Report on Abusive
Restraint and Seclusion in Schools

National Disability Rights Network, January 2009

Map of State law or regulation on restraint and seclusion

The lethal hazard of prone restraint: Positional asphyxiation.
PROTECTION & ADVOCACY, INC.
INVESTIGATIONS UNIT
433 HEGENBERGER ROAD, SUITE 220
OAKLAND, CALIFORNIA 94621
TELEPHONE: (800)776-5746
April 2002
Publication #7018.01

Restraint & Seclusion in California Schools: A Failing Grade
Protection & Advocacy, Inc.
Investigations Unit
1330 Broadway, Suite 500
Oakland, CA 94612
June 2007

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Website: Practitioner Issues in Behavior Analysis SIG
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Views and news expressed in this blog or by the PIBA SIG are those of the SIG and SIG members and do not represent official policy of ABA International or other official body. For official policy of the Association of Behavior Analysis International, the reader is directed to their website, http://www.abainternational.org

Sunday, May 17, 2009

NEWS: CA "Obstacles To Winning Coverage for Autism Treatments Linger"

Story from the California Healthline May 11, 2009

"Monday, May 11, 2009
Obstacles To Winning Coverage for Autism Treatments Linger

The [CA] Department of Managed Health Care has declined five requests for independent medical reviews of insurers' denials for a type of autism treatment, sparking concerns from parents of children with autism and legislative leaders, the Los Angeles Daily Journal reports.

Insurers maintain that applied behavior analysis, also called ABA, is an educational treatment, not a medical service. Health plans have declined to cover the service, which can cost $70,000 annually.

Until recently, DMHC forwarded appeals of such claims denials to independent medical reviews, but the department has shifted the way it interprets state law.

According to the Daily Journal, the new interpretation means that regulators will reject requests for independent medical reviews if a health insurance policy does not guarantee coverage of the service.

Story from CaliforniaDMHC spokesperson Lynne Randolph said the agency is reviewing each case individually and would grant independent medical reviews for appropriate cases.

Licensed Providers

Parents also are having problems getting health plans to cover ABA services because insurers are requiring a licensed provider to perform the service.

California currently does not require licenses for ABA providers, and parents of autistic children have reported obstacles obtaining lists of licensed ABA providers (George, Los Angeles Daily Journal, 5/11)."

http://www.californiahealthline.org/Articles/2009/5/11/Obstacles-Linger-To-Winning-Coverage-for-Autism-Treatments.aspx

Website: Practitioner Issues in Behavior Analysis SIG
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Views and news expressed in this blog or by the PIBA SIG are those of the SIG and SIG members and do not represent official policy of ABA International or other official body. For official policy of the Association of Behavior Analysis International, the reader is directed to their website, http://www.abainternational.org

Friday, May 15, 2009

House Bill 2413 introduced; companion to S.819 Autism Treatment Acceleration Act

[Received this message from Autism Votes Fri, May 15.
FYI, this is House Resolution 2143 (H.R. 2413)]

H.R.2413
Title: To provide for enhanced treatment, support, services, and research for individuals with autism spectrum disorders and their families.
Sponsor: Rep Doyle, Michael F. [PA-14] (introduced 5/14/2009) Cosponsors (3)
Latest Major Action: 5/14/2009 Referred to House committee. Status: Referred to the Committee on Energy and Commerce, and in addition to the Committees on Education and Labor, Oversight and Government Reform, and Armed Services, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

and is the companion bill to the Senate version,

S.819
Title: A bill to provide for enhanced treatment, support, services, and research for individuals with autism spectrum disorders and their families.
Sponsor: Sen Durbin, Richard [IL] (introduced 4/2/2009) Cosponsors (7)
Latest Major Action: 4/2/2009 Referred to Senate committee. Status: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Dear Autism Advocate,

Autism Speaks, the nation’s largest autism science and advocacy organization, today applauded Representatives Mike Doyle (D-PA), Chris Smith (R-NJ), Eliot Engel (D-NY), and Hank Johnson (D-GA) for their introduction of a House companion bill [HR 2143] to the Senate's Autism Treatment Acceleration Act (ATAA) [S.819], which was introduced last month by Senators Richard Durbin (D-IL), Robert Casey (D-PA), and Robert Menendez (D-NJ). Like the Senate version, the House version of the ATAA (H.R. 2413) is comprehensive federal legislation that addresses several critical challenges facing the autism community, including increased funding for scientific research, treatment and services. The ATAA incorporates provisions from the Expanding the Promise of Individuals with Autism Act (EPIAA), originally proposed by Representatives Doyle, Smith, Engel, and former-Representative Chip Pickering.

As in the Senate's ATAA bill, a key section of the House bill requires all insurance companies to provide coverage for the diagnosis and treatment of autism spectrum disorder (ASDs), including coverage of Applied Behavior Analysis (ABA) therapy – a medically-necessary, evidence-based autism treatment. While the number of states that have enacted comprehensive autism insurance reform legislation has grown to ten, most state insurers are still allowed to specifically exclude coverage for these critical services, which can cost upward of $50,000 a year – well beyond the means of most families.

The House version of the bill also addresses the unique needs of adults with ASDs, creating a demonstration project with one-year planning grants and multi-year implementation grants for the provision of service for adults with autism. In addition, it creates the Network for Autism Spectrum Disorders Research and Services aimed at accelerating the dissemination and utilization of critical, new information, moving it from “bench to bedside” as quickly as possible.


Now Help US Get ATAA Passed!:


1. CONTACT YOUR FEDERAL REPRESENTATIVE! Urge him/her to become a cosponsor of the ATAA bill, H.R. 2413.

> Call your Representative's office and let him/her know that you support the ATAA bill, H.R. 2413, and you want your Representative to become a cosponsor today. Click here to find the name and phone number for your federal Representative!

> Send an email to your Representative! Autism Votes has written part of the email message for you. All you need to do is fill in the empty box with your story about your family's experience with autism and how the ATAA bill will help. Click here to send an email to your Representative!

2. STAY INFORMED ON THE ATAA BILL! Sign up to receive Autism Votes email alerts and stay informed on the progress of the ATAA bill.

3. FORWARD THIS EMAIL TO FRIENDS AND FAMILY! Get your friends and family involved in getting the ATAA bill passed.

For a complete summary description of both the House and Senate ATAA bills, visit our website at www.AutismVotes.org/ATAA.

Sincerely,

Elizabeth Emken
Vice President, Government Relations
Autism Speaks


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Website: Practitioner Issues in Behavior Analysis SIG
-----------
Views and news expressed in this blog or by the PIBA SIG are those of the SIG and SIG members and do not represent official policy of ABA International or other official body. For official policy of the Association of Behavior Analysis International, the reader is directed to their website, http://www.abainternational.org